I Corinthians 12:24-27

But God has put the body together.... that its parts should have equal concern for each other. If one part suffers, every part suffers with it; if one part is honored, every part rejoices with it.

Now you are the body of Christ, and each one of you is a part of it.

Tuesday, July 22, 2014

MRI is today

MRI has been scheduled for today.  We are to arrive at 3:30 pm scheduled for a 5:00 pm MRI.  We are a work in, so you know what that means - there is no telling what time she will actually go back! 

There are so many things on my heart to ask you to pray for.  I'll stick with the simple for now.  Please pray for Amanda today.  Pray that she will have peace and courage.  She wants this MRI so we can see what our best plan of attack is.  Oh how I love that girl.  Please pray for Brandon.  As I have mentioned, his birthday is this week and he is being a champ with rescheduling his party and putting things off.  I am thankful that we see so many blessings in so many unexpected places. 

Amanda has asked to go see Romeo this morning, so we are off for a visit and hopefully a short ride!  Our amazing family at ROCK has been so supportive and loving to our family.  We have so many things to be thankful for.

As I sit and type this, I can't put into words the overwhelming peace I feel despite the tears that are falling.  We feel the support, love and encouragement.  Thank you doesn't feel like enough, but thank you.  As far as I'm concerned, we are not done fighting.  Amanda is not done fighting. 

In all that we do in these challenging, heartbreaking moments, may we continue to glorify God. 

Deuteronomy 31:6
Be strong and courageous. Do not fear or be in dread of them, for it is the Lord your God who goes with you. He will not leave you or forsake you.

Monday, July 21, 2014

The decisions lay before us....

I almost feel too raw and heartbroken to even have emotions at this point.  I'm too tired to think.  Much less try to articulate how our appointment went today, but here goes:

We basically have four options, all with very different impacts on Amanda's already worn down little body.  The first would be Amanda participating in a phase one study on a new drug at a hospital outside of our local area, possibly out of state.  The second would be an aggressive chemo drug, but with no strong indicator that it will have a solid impact on her tumor and will likely make her feel ill.  Third, there is a lighter chemo drug with minimal side effects that would best be described as palliative, or fourth, no treatment at all.

Let me throw in number five - which would be an unexplainable healing from our great Physician.

We are going to have an MRI done in the next 48 hours to see if we can pinpoint why she has had the sudden resurgence of those early side effects we are seeing and to see if there are any other changes that might be going on.  After reviewing the scan with our team, and after much prayer, we will then make our decision on what treatment plan we will do.

Only God numbers her days.  He can heal her and keep her here with us as long as He chooses.  Her time on earth is in His hands. Tonight, that is where I find my comfort.

But other than the number five option, I have to admit - I hate them all.  I want Amanda healed.  Completely.  I want to keep her here.

Please pray for our entire family over these next few days as we walk this heartbreaking path and for Tom and I as we make a decision.  Amanda has been involved in conversations over the last few days, listening and giving her thoughts.  I am so proud of her for that.

Thank you for all the prayers.  We felt them powerfully.  I have strong children who have a faith in God that never ceases to amaze me.  Amidst the tears and heartbreak we were all experiencing during today's appointment, both kids stayed in the room to be a part of all the discussions at their own choice.  During a moment when Dr. Harrod stepped out, Amanda asked if we could pray.  So we did.  In the exam room, knowing we could be interrupted at any moment, it didn't matter.  We took the time to pray and cry out to God, asking for strength and comfort in our greatest time of need. 

Matthew 18:4
Jesus said, "Whoever humbles himself like this child is the greatest in the kingdom of heaven."

Hebrews 12:1-2
 Therefore, since we are surrounded by so great a cloud of witnesses, let us also lay aside every weight, and sin which clings so closely, and let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith, who for the joy that was set before him endured the cross, despising the shame, and is seated at the right hand of the throne of God.

Sunday, July 20, 2014

Cousin Camp, swimming and Romeo

We celebrated the July birthdays at my parent's house last weekend.  This included both Brandon and my niece Katie.  While at my parent's house, we went down to my sister's so Amanda could see the baby deer and horses. 

That evening, with two prior unsuccessful attempts behind us, we were able to have cousin camp! Cody is in Italy studying abroad so he was not able to be with us.  We missed him! 

After a fun day at the Maw Maw and Papa's, it was off to Georgetown.




Now, off to our house!

Of course, there was NERDS.
Everyone jammed out with a little Rock Band.
Amanda enjoys painting pottery so much, we decided to do a little DIY project and have everyone decorate their own coffee mug!
Amanda has been working on a surprise for each of her cousins. She hand painted a rock with something special that describes them and gave them their rocks at Cousin Camp.

Kyle has recently taken up archery.
As I mentioned, Cody couldn't be at camp because he is currently in Italy, but she drew him a beaker since he enjoys research.
For Jon and Sandra, she painted a horse.
For Ryan, a baseball.
For Katie, a cupcake.
The next morning, we went swimming - big surprise, huh?  It amuses me the things they find to do...



What's swimming without a good game of Marco Polo?








These two always seem like they are up to something...
Before we left, I wanted to do a group picture.  Up until this point, I had not gotten in the water....
  ....one misstep and that all changed!

Cousin Camp, Summer 2014 - missing our Cody!
After I fell in, I decided I might as well take a dip and that is when the kids started to really have fun...
 Bring on the cannonballs!





 


Oh to be young again.....that looks like it had to have hurt!

My artistic side loves this shot.
And I love this smile.
The week after cousin camp, we did some swimming on our own, just the four of us.

Ahh! She actually took a selfie with me - and smiled!


So, I was trying to capture the cross through the cascading water across my hand.  For some reason it reminded me of Isaiah 43.
“Fear not, for I have redeemed you; I have called you by name, you are mine. When you pass through the waters, I will be with you; and through the rivers, they shall not overwhelm you; when you walk through fire you shall not be burned, and the flame shall not consume you. For I am the Lord your God, the Holy One of Israel, your Savior."
Not all of our activities lately have been swimming.  We did make a trip to ROCK to see Romeo and take Brandon and Kyle to the pottery place. 

Talk about royal treatment - Romeo came right up to the car so Amanda didn't have to walk far.






Our appointment is scheduled for tomorrow at 2:00.  Again, please pray for wisdom, discernment and strength for all four of us.  I am ready for tomorrow to be here!  Thank you for all of your support and love over these past three weeks. 

2 Timothy 1:7 
For God gave us a spirit not of fear but of power and love and self-control.